What is PNH?

Paroxysmal Nocturnal Haemoglobinuria PNH is a rare blood condition where blood cells are prone to be attacked by part of...

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Diagnosis

How is PNH diagnosed? It can often take a long time to make a diagnosis of PNH as it is a very rare illness that many do...

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Living with PNH

Many patients with PNH have never met someone else with the condition. The patient group allows patients the opportunity...

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Treatments

There are a number of different treatments that patients with PNH may require. Some people, especially those with a lowe...

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Outreach Clinics

To enable us to provide outpatient clinics closer to patients’ homes, agreements are in place with eight other NHS tru...

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PNH Registry

Information for Patients The PNH Registry is an international research database that collects anonymised data on patient...

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Patient Forum

Join our discussion forum to talk to others affected by PNH. The community’s active members include people with PN...

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