Information on coronavirus

The NHS has put in place measures to ensure the safety of all patients and NHS staff while also ensuring services are available to the public as normal. If you are on complement inhibition, e.g. eculizumab, and are unwell please contact the team as usual and we will advise.

 

UPDATED: 16/09/2020

For information on coronavirus in relation to PNH please go to our page on coronavirus. To learn about the government response visit GOV.UK. Hospital appointments may be affected.

Information for Healthcare Professionals

Information for Patients

 

Download the new look patient newsletter which includes the date of our PNH Patient Group Virtual Zoom Meeting.

Contact us

PNH National Service Department of Haematology, Level 3, Bexley Wing, St James’ Institute of Oncology, Beckett Street, Leeds LS9 7TF

Tel: 0113 2068625

The National PNH Service, England is renowned worldwide for the expertise in managing patients with PNH. As it is a rare disease, there is a concentration of experience within the Service that cannot be matched elsewhere in the world due to the high numbers of patients managed. The team regularly provide education both in the UK and worldwide to further the knowledge both in terms of diagnosis and management and this has improved patient care worldwide through diagnosis and management. These are meetings to health boards, hospitals, doctors, nurses and other healthcare professionals. We are only able to do much of this with support from the pharmaceutical industry. We additionally provide a consulting service also for development of new therapies to ensure the best possible care for patients in to the future.