Join our discussion forum to talk to others affected by PNH. The community’s active members include people with PNH as well as family and friends.

View the PNH Patient Forum

The PNH Patient Forum is now using Google Groups for all online discussions and requires all participants to have a Google Group Account. If you do not have a Google Account please complete the instructions below.

How to join the forum

  1. Create a Google Group account, if you do not already have one. Go to and select “Sign In” in the upper right-hand corner.
  2. Click “Create an Account” and enter your e-mail address (note: there is no need to set up an email account as part of this process).
  3. Click the link to join the PNH Patient Forum.
  4. Click the “Apply for Membership” link to join.
  5. If you wish to receive email notifications when others post in this forum, select an option from the drop down menu.

How to post a message to the forum